What is Palliative CAre?
definition
Palliative care for children is the active total care of the child's body, mind, and spirit, and also involves giving support to the family. It begins when illness is diagnosed and continues regardless of whether or not a child receives treatment directed at the disease.
Health providers must evaluate and alleviate a child's physical, psychological, and social distress.
Effective palliative care requires a broad multidisciplinary approach that includes the family and makes use of available community resources; it can be successfully implemented even if resources are limited. It can be provided in tertiary care facilities, in community health centres and even in children's homes.
resolutions
67th World Health Assembly: Resolution 67.19. (2014)● To develop and strengthen the integration of palliative care into national health systems.● To address ethical issues related to the provision of comprehensive palliative care, such as equitable access, person-centred and respectful care, and community involvement.● The need for continuing education and adequate training for all hospital- and community-based health care providers and other caregivers, including non-governmental organization workers and family members.● It is the ethical duty of health care professionals to alleviate pain and suffering, whether physical, psychosocial or spiritual, irrespective of whether the disease or condition can be cured, and that end-of-life care for individuals is among the critical components of palliative care.
Universal Health Coverage● WHO welcomes the inclusion of palliative care in the definition of Universal Health Coverage.● Universal health coverage is access to health care whenever and wherever without financial hardship.
Paediatric Palliative Care Services
Hospitals with paediatric palliative care specialists
Hospitals with palliative care services &paediatricians with special interest in palliative care
penang
Hospital Pulau PinangDr Lim Voon Lee
Hospital Seberang JayaDr Teoh Yen Lin, Dr Tan Mei See
Johor
Hospital Sultanah AminahDr. Emieliyuza Yusnita Alias
Hospital Sultan IsmailDr. Che Hadibiah Bt Che Mohd Razali
sarawak
Sarawak General HospitalDr Nickson Tai
sabah
Woman and Children Hospital SabahDr Ng Su Fang
Community/Home Palliative Care
Palliative Care services offered by each organisation varies and the group of children they will accept in their services may vary. Please contact each organisation for confirmation. Services listed on as member hospices with Malaysian Hospice Council can be found at:https://www.malaysianhospicecouncil.com/hospice-in-malaysia (visited 16/11/2019)
other services
Hospis Malaysia
2 Jalan 4/96, off Jalan Sekuci,
Taman Sri Bahtera Cheras,
56100 Kuala Lumpur, Malaysia.
Tel:+603-9133 3936
Fax:+603-9133 3941
Email: gro.aisyalamsipsoh%40ofni
Website: https://www.hospismalaysia.org/
Kasih Hospice Foundation
16, Jalan SS 3/29
47300 Petaling Jaya
Selangor, Malaysia.
Tel:+603-7865 6522
Fax:+603-7872 9420
Email: gro.noitadnuofhisak%40yriuqne
Website: https://kasihfoundation.org/
Assisi Palliative Care Bhd (Aspac)
49, Jalan Railway 1/2,
46000 Petaling Jaya,
Selangor, Malaysia.
Tel:+603-7783 8833
Mobile:+6 010-391 6899
Email: ym.capsa%40ofni
Website: https://www.aspacmalaysia.org
ASSISS Palliative Services (Assunta Hospital)
No. 83, Jalan Templer, 46990 Petaling Jaya, Selangor Darul Ehsan.
Tel: 03-7931 3366
Fax: 03-7931 3393
Email: moc.liamg%40atnussa.ssissa
Website: https://www.assunta.com.my/assunta-integrated-social-services-assiss/
Faith Hope Love Hospice Care Malaysia
9, Jalan 1/3, Seksyen 1. 46000. Petaling Jaya, Selangor.
Tel: 010-393-0150
Fax: 03-7498-5151
Email: moc.liamg%40eracecipsohlhf
Email: gro.ecipsohlhf%40ofni
Website: https://www.fhlhospice.org
Helpful conferences
Asia Pacific Hospice Network (APHN) up-coming events: https://aphn.org/upcoming-events/
The International Children’s Palliative Care Network (ICPCN) is the only global organisation working to improve access to palliative care for the more than 21 million children worldwide who need it. ICPCN is recognised as the world leader in children’s palliative care (CPC) and has a globally renowned expert leadership, a wealth of educational resources and a network of members in over 140 countries. (https://icpcn.org)